Useful Links and Resources for Patients

Alpha-1 Resources:

• What is Alpha-1?
• A Guide for the Recently Diagnosed Alpha-1 Carrier
• A Guide for the Recently Diagnosed Individual
• Issues in End-Of-Life Care
• Taking Part in Alpha-1 Research
• Alpha-1 Foundation

Rare Interstitial Lung Disease

• Pediatric:
  • Children's Interstitial Lung Disease Foundation (chILD Foundation)
• Adult:
  • Pulmonary Fibrosis Foundation

Lymphangieleiomyomatosis (LAM)

• What is LAM?
• The LAM Foundation

Pulmonary Alveolar Proteinosis (PAP)

• What is PAP?

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