The Urea Cycle Disorders Consortium
What is the UCDC?  

Mission Statement

The Urea Cycle Disorders Consortium is a group of health care professionals and researchers dedicated to improving the lives of patients with urea cycle disorders.  The Consortium has established centers of clinical and scientific excellence across the United States to work with patients and physicians to provide information and care with the latest information and technology.  The UCDC strives to provide current and useful information on urea cycle disorders to health care professionals and families.   The Consortium is also dedicated to research in clinical and scientific issues in urea cycle disorders.   To better understand the nature of these diseases, the Consortium has established a National Registry for patients, and is conducting long-term studies on the outcome of patients with urea cycle disorders.  The Consortium also has laboratory researchers working to develop new treatments and new understandings for urea cycle disorders.  With better understanding of these diseases, we hope to improve the future for our patients and their families.